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#22 He danced while I cried

Posted BehindStarburstEyes on 03 April 2013 - 10:48 AM

Tonight I cried while he danced. He looked like poetry in motion as music became movement. As fast as the bass that was pulsating through the speakers, his feet became a blur as they almost flew across the floor and through the air.
I watched and I knew in my heart this right here right now, was what he was born to do. It wasn’t just the ease with which he watched another contender and added their moves to his own freestyle piece. It was so much more than that. It was the way his eyes glowed with certainty, for he KNEW what to do. He “gets” how to translate music into movement. For all the confusion he still has in various social settings, put him on a stage or dance floor and crank up the tunes and watch the joy and sense of rightness that glows from within him.
Sweat soaked and muscles burning from exertion and still his smile illuminates his own starburst eyes that are so much like my own. It’s almost like the combination of music and movement unlocks some secret special place within him, and you can almost physically see everything “clicking” inside his mind for him. Like the movement pushes the confusion and anxiety that often plague him completely out of his mind. While the music pulsing causes synapses after synapses to occur in places that didn’t communicate properly with each other prior to that moment. For those few minutes on stage you can see how centered within himself, and whole he truly is, and it’s more beautiful than words can describe.
It’s his version of “therapy” for in those moments on stage he feels joy and acceptance in who he is. There, right there, my boy who has been judged for not being able to stay still, for randomly twirling or flapping his hands when he’s having a sensory overload is judged on how well he can move.


Originally posted on Behind Starburst Eyes: http://behindstarbur...-while-i-cried/


#183 Sensory Challenges with Singing and Groups of People Being Loud

Posted cchammer on 16 August 2013 - 01:27 PM

Preparation and practice are always great ways to reduce anxiety or address sensory issues. I would take what mhuges said one step further by recording a group singing and then having your son to listen to it on a very low volume that he can tolerate. Then allow him to increase the volume at his pace and under his control until he can listen to it at full volume. This is a great desensitization tactic that has worked for many parents.
Another thing to consider is that it might be more of a reaction to something unexpected rather than something loud or the singing itself. This is when preparation for any outing comes in handy. Telling your child what you know will happen and what might happen ahead of time will reduce the surprise factor and help make him more comfortable.
Happy parenting!


#243 HI IM NEW HERE

Posted Christophers mom on 25 October 2013 - 12:18 PM

My name is Teresa I have 2 boys Christopher has Autism he is 11 years old and Dakota he is 12  he does not have Autism but he is ADHD I hope to make friends here


#152 new here :]

Posted lissetteg on 29 July 2013 - 01:24 PM

Hi am the mom of an 8 year old boy with Autism and a month old baby girl.
My son Justin was diagnosed at three but, I knew before then something was off (no one knows are kids like we do)
It's been quite the struggle but, like you I also wouldn't trade him for the world. I hear you and can totally relate about " not having friends"
but, if there is one thing I've learned through this journey it has been to realize, they weren't really friends to begin with. I have not only lost friends but family and honestly GOOD RIDDANCE! now I focus on helping my son and making a better life for him. Good luck to you and your little ones.:)


#144 new here :]

Posted CrystalMoma88 on 17 July 2013 - 10:13 PM

My name is Crystal and I am 24. I have been married for 3 years and have 2 beautiful and amazing children. I have Aaron who will be 3 August 18th and Kaitlyn who just turned 2 July 13th. Aaron was diagnosed with autism back in january. Something that I always knew inside but I wouldn't change him for anyone. He receives ABA therapy 5 days a week, which helps big time . He also receives OT and ST once a week. I just want to find new friends who understand what it's like because I no longer have any.


#141 Hello everyone

Posted National Autism Network on 15 July 2013 - 08:34 AM

Welcome Irene. It's great to have you on the network.  I invite you to add your organization to our Provider Directory if it's not already there.  If it's not, it's probably easiest to create a second registration as a Provider specifically for Josiah's House, Inc.


#112 A community divided

Posted jphillips on 27 June 2013 - 10:33 AM

This may or may not be the right place to voice my opinion on this subject but I wanted to get it out.  As a father with a 3 year old daughter on the spectrum, we have been involved in the autism community now almost a year.  In that year, we have gotten tremendous support from other parents of children with autism, from local organizations and from the providers that work with our child, and we have been extremely thankful for that support during one of the hardest years of our lives.  We have noticed somewhat of a divide though within the autism community as a whole.  The divide can be seen through various categories: those who support Autism Speaks and the work they're doing and those who don't, those who believe there are benefits to bio-medical treatments and those who don't, those who believe vaccines play a role in the increase in rate of autism and those who don't, and so on.  Each side also seems to hold strongly to their opinions, which they are entitled to, but also seems to criticize the opposite side's opinion and thus alienate them.
It is my opinion that we all need to look at the bigger picture instead of trying to force our beliefs onto everyone.  As a parent, I want what is best for my child and I will do my best to educate myself on the best treatments available and do everything in my power to keep her safe.  I can only assume that all parents want the same thing.  I propose that we all come together and share information about what is working and not working, but keep in mind that we make these decisions from a place a love for our child and wanting what is best.  You may believe something different from me, but we're acting for the same thing and we have the same goal- to give our child the best life possible.


#675 Life Experience College Degree

Posted winniehardy on 07 January 2017 - 04:57 AM

Online life experience programs is growing rapidly, and the best online life experience degree provider is offering you a good well maintain and experts assistance. you well definitely get your degree instantly.


#551 Just joined, so confused

Posted yjl4132 on 12 January 2016 - 12:02 AM

As for me, I was not quite fortunate since my parents did not suspect of my autism. I was told that I spoke after I was 5 years old. I did very well academically throughout my primary education. This really did not become an advantage as I was unable to engage frequently in many social interactions. Of course, I attempted to join clubs and gain friends. However, I would notice that my academics would drop significantly since I was not sure how to balance academic life and social life. I really had no coping mechanisms for the stress at one such time and became severely depressed. Although I managed to recover somewhat, I was left unprepared for college since it was a completely different environment. I decided that I had to take a break from college to get answers as I soon became depressed again.
It is so important to get help as early as possible and give as much support to your children.


#527 Hello, just joined as an SLP and AAC Provider

Posted RTaveras on 22 October 2015 - 12:05 PM

Hello Everyone!! I have just joined as an SLP and AAC Provider!  I am very excited to be a part of this Network.  
Renee Lopardo-Taveras M.S., CCC-SLP
Bridgewater, NJ


#453 Greeting from a family member

Posted CRoedocker on 12 October 2014 - 11:36 AM

Wanted to say hello as suggested by the signup process.
My second cousin was diagnosed with autism about four years ago, although non-verbal, he is a very bright young man.
I saw a post to LinkedIn introducing this site and I had to join.  The HIPAA-compliant info sharing features are extremely exciting and, quite frankly, revolutionary.

Regards,
Christopher Roedocker


#446 Getting public schools to provide special education to AS students

Posted timrunner69 on 01 September 2014 - 11:48 AM

Here at Advocates for Kids, we represent many Asperger students because the schools refuse to help them. "They don't need special education services because they are getting good grades." They ignore the fact that they are often bullied, have few if any friends, and don't participate in activities. We have had success based on the law that says, "the student is to be assessed in all areas of suspected disabilities." Their disability shows up in speech and language assessments, particularly in the areas of pragmatics and social skills. They have difficulty understanding inferences and analogies (One student said, "I've never seen it raining cats and dogs."). They take everything literally. This can impact their reading comprehension scores as they get older. The bottom line is they do qualify for special education in the area of speech and language if not Autism. The students I represent have benefited from therapy involving pragmatics, social skills, inferences and analogies. They also benefit from learning how to read body language. Tim Runner, Advocate.


#444 Hi I am autistic

Posted RPM on 21 July 2014 - 05:09 PM

Hi I am Ryan from Michigan and I am on the autism spectrum.


#425 'Autism may have played a role a mass killing'

Posted whitey on 16 June 2014 - 02:16 PM

You've got to be kidding me.  Yes I was picked on in school, but that didn't make me want to hurt the people.  Well, I may have wanted to, but I knew right from wrong and would never.


#423 'Autism may have played a role a mass killing'

Posted Beals33 on 09 June 2014 - 02:17 PM

I wouldn't want my child labeled as violent regardless.  Even if it's just used to get better care and treatment, people may look at him differently and he doesn't need any more negativity from ignorant people.


#409 Hello

Posted wackyr35 on 16 May 2014 - 07:28 AM

Just joined and wanted to say hello. I have a facebook page called Autism = Happy Fears & Silent Tears. Please check it out. I also have a blog at http://autismhappyfe....wordpress.com/ . Please let me know what you think.


#406 I just joined and wanted to say hello! :)

Posted rab1973 on 04 May 2014 - 06:37 PM

HI Lisa , thats wonderful! How do parents with children of autism order the vest?  Is this somthing year around or where at school? How does it work?Thanks


#404 New to NAN - Hello!

Posted ASNC_Tech on 29 April 2014 - 05:49 AM

I work with a young man in the Raleigh NC area and was hoping to connect with others for good ideas of daily activities to fill our day-to-day schedule and/or ANY advice, tips or information that may help myself or my buddy! Thanks so much!


#385 Melatonin?

Posted samsmomiam04 on 09 March 2014 - 02:16 PM

My son takes just 1mg each night about 30-60 minutes before going to bed. It really helps. He wakes easily in the mornings.


#363 Anxiety, anxiety and more anxiety

Posted wardalado on 25 January 2014 - 08:04 AM

There are a lot of variables that can contribute to, or ameliorate, anxiety.  Relatively scripted procedures, like picture schedules, are relatively easy for parents/teachers/practitioners to replicate.  With that in mind, I have also scripted procedures designed to proactively teach students to calm themselves in the presence of stressors.  I call the procedure "calm counts", and there is a free download describing the rationale/procedures/data available on our website: www.wholechildconsulting.com.  Videos of the procedure are also available for viewing on that site.  Autism Training Solutions also hosted a webinar on the topic, for those interested in more.  Steve Ward, MA, BCBA, Whole Child Consulting, LLC