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National Autism Network

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4 Bloggers Spreading Awareness & Hope To Families With Special Needs

Posted by The SAILS Group , in Family Issues, Coping & Encouragement, Education & Autism, Autism Awareness 01 December 2016 · 779 views
autism, blogger, special needs and 1 more...
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Autism Daddy  

What is most noticeable about parents who have children diagnosed with severe autism is their ability to be humble, frank, and among other things, patient — especially with people who don’t understand the realities of autism. Started by 46-year old Frank Campana, whose son 1...


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August is a great time for face time with your Members of Congress

Posted by TamieVOR , in Autism Awareness, Legislation & Healthcare, Research & Autism, Family Issues, Advocacy 06 August 2014 · 836 views

From August 1 - September 7, Members of Congress will be from their State and District offices near your home . This is an incredible opportunity for you to meet face-to-face with your elected officials to share your perspective regarding the services and supports required by your family members and friends with intellectual and developmental disabilities...


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People as Pendulums: Has social reform on behalf of individuals with developmental disabilities swung too far?

Posted by TamieVOR , in Autism Awareness, Legislation & Healthcare, Research & Autism, Family Issues 04 August 2014 · 1,195 views

By Tamie Hopp, VOR Director of Government Relations & Advocacy in Nonprofit Quarterly   , July 16, 2014

Early reforms were quite properly motivated by the need for a system of care and supports that responded to the very individualized and diverse needs of the entire population of people with I/DD. These reforms, however, also set the stage for decad...


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In Recognition of Autism Awareness Month, VOR Speaks Out About National Crisis: A Lack of Choice, Quality and True Person-Centered Care For The Disabl

Autism, advocacy and 3 more...
In Recognition of Autism Awareness Month, VOR Speaks Out About National Crisis: A Lack of Choice, Quality and True Person-Centered Care For The Disabl For Immediate Release
For more information: Julie Huso, VOR Executive Director, jhuso@vor.net ; 605-370-4652

Elk Grove Village, IL – April 15, 2015:  Across the country, tens of thousands of individuals with developmental disabilities, including autism, are suffering due to lack of access to appropriate care and services.

The numbers representing presen...


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Home is the Where the Heart is: The Coalition for Community Choice (CCC) is a unified voice for increasing options and decreasing barriers to housing

choice, family, housing
Home is the Where the Heart is: The Coalition for Community Choice (CCC) is a unified voice for increasing options and decreasing barriers to housing By Tamie Hopp , Director of Government Relations & Advocacy, VOR ; and Desiree Kameka , Director of Community Education & Advocacy, Madison House Autism Foundation
Excerpts ; Originally published in EP (Exceptional Parent) Magazine (April 2014)  

Did you know…  
In the next decade, over 800,000 on the autism spectrum will transition to adulthoo...


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VOR May 1 Registration Deadline Approaching Fast! Register Today

Posted by TamieVOR , in Advocacy, Family Issues, Legislation & Healthcare, Education & Autism, Autism Awareness, Uncategorized 31 March 2014 · 1,223 views
Conference, advocacy, autism and 4 more...
VOR May 1 Registration Deadline Approaching Fast! Register Today A special thanks to those who have reached out to learn more about VOR .  
I am writing today with a reminder. As I wrote here previously , VOR will host its annual national Conference and Congressional Initiative  in Washington, D.C. this June.  

   The MAY 1 Conference Registration deadline is approaching quickly.  You do not want to miss VOR's...


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Meet VOR: An organization that unites by refusing to redefine individual choice

Posted by TamieVOR , in Legislation & Healthcare, Autism Awareness, Uncategorized, Advocacy, Family Issues 04 March 2014 · 963 views
advocacy, choice, person-centered and 5 more...
Meet VOR: An organization that unites by refusing to redefine individual choice I am delighted to have this opportunity to introduce you to VOR  , an organization that is really like none other.

VOR is a national, nonprofit organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities.

We are the only national advocacy organization that has not redefined terms that ot...


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Should you tell your child about his or her diagnosis?

Posted by Robert Naseef Ph.D. , in Uncategorized, Family Issues 24 January 2014 · 1,860 views

Parents often agonize over if and when they should tell their child he or she has autism or other developmental issues.  If your child had asthma, or diabetes, you wouldn't keep it from her.  If she is on the spectrum or has ADHD or OCD, telling her is still the right thing to do.  Your child needs to know.  You need to be comfortable discussing your...


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What do guys talk about?

Posted by Robert Naseef Ph.D. , in Family Issues, Fathers Issues 21 January 2014 · 1,156 views
autism, special needs, aspergers and 6 more...
At last week's meeting, a guy turned up with the "Guy Talk" flyer in his hand and said, "My girlfriend said I should come here." After going around the room and introducing ourselves, I asked the new guy what he wanted now that he was here with the rest of us.
"I just want to know how you guys deal with it."
One man said he m...


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Our story- the beginning from diagnosis

Posted by sdiggs , in Coping & Encouragement, Family Issues 14 January 2014 · 840 views

My name is Stephanie and this is my first foray into blogging so please bare with me :)   I am a mother to three children: 2 boys and 1 girl.  My youngest son is 3 and was somewhat recently diagnosed with autism.  Initially, our son's diagnosis was a bomb shell. I don't know if we were living under the delusion that he was just developing slower b...